I was born different. There’s no denying that. Maybe it’s not as noticeable now, but the truth is I wasn’t like all of my peers. Not completely anyways. I had appointments with reconstructive surgeons. I received copious amounts of stares out in public. And I knew the ins and outs of my local children’s hospital.… Continue reading Finding My Craniofacial Tribe
I often wish I were quick-witted. I wish I knew what to say the very moment it needed to be said. For instance, the other night in an elevator a preteen was standing across from me, noticed something weird about my face, and ran over to her friend to whisper in her ear. Her friend… Continue reading I am in Control
It’s here! It’s finally here! It’s been a year since I found out I would be writing a book and having it published, but in many ways, it feels like I’ve been waiting for this day my entire life. I don’t necessarily believe in fate or destiny, but I have always known I would do… Continue reading When a Perfectionist Writes a Book
Ok, I’ll admit it. When it comes to my appearance, I’m pretty lazy. Most weekdays I toss my sopping wet hair up into a bun and head out the door to my job. In my defense, the alarm on my phone usually starts its obnoxious blaring at 4:30 in the morning so I can go… Continue reading What Happened When I Took Pride in My Appearance
Last night, my cousin tagged me in a Facebook post about a newborn baby with Treacher Collins Syndrome. When first finding out she was pregnant, the biological mother planned on giving her up for adoption. A facial anomaly was unknown during the pregnancy and the mother simply couldn’t handle a child at the time. Adoptive… Continue reading An Open Letter to the Mother of a Newborn with Treacher Collins Syndrome
