Life

Finding My Craniofacial Tribe

I was born different. There’s no denying that. Maybe it’s not as noticeable now, but the truth is I wasn’t like all of my peers. Not completely anyways. I had appointments with reconstructive surgeons. I received copious amounts of stares out in public. And I knew the ins and outs of my local children’s hospital.… Continue reading Finding My Craniofacial Tribe

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Strength

I am in Control

I often wish I were quick-witted. I wish I knew what to say the very moment it needed to be said. For instance, the other night in an elevator a preteen was standing across from me, noticed something weird about my face, and ran over to her friend to whisper in her ear. Her friend… Continue reading I am in Control

Strength

An Open Letter to the Mother of a Newborn with Treacher Collins Syndrome

Last night, my cousin tagged me in a Facebook post about a newborn baby with Treacher Collins Syndrome.  When first finding out she was pregnant, the biological mother planned on giving her up for adoption.  A facial anomaly was unknown during the pregnancy and the mother simply couldn’t handle a child at the time.  Adoptive… Continue reading An Open Letter to the Mother of a Newborn with Treacher Collins Syndrome