How To Ask Me About My Unique Appearance

There are many reasons why I write: to tell my unfiltered story, to bond with others dealing with craniofacial differences, and to educate those who are not. I have always wished that strangers knew more about Treacher Collins syndrome so they could see me the way I see myself. I think people forget that I don’t stare at my uniqueness all day long. The only time I see what I look like is in a mirror or photos. The rest of the time I just witness life around me through my own eyes, the way everyone else does. I see the bridge of my nose, the tips of my bangs, and on occasion, the rim of my glasses. I truly forget that I am even ...

Questions with Kristin

Now that I am finished writing my book (yay!), I have more time to concentrate on blogging. I figured this would be the perfect time to let you into my world a little more. I want you to know that I am more than just my syndrome, and the proof is below. Let’s play 21 questions…OK, more like 100 questions. Here are the first 25! Who is your hero? I’ve never had a single hero or idol. Instead I choose to emulate specific values I admire from those closest to me. Although, I do believe there are heroes and they serve in the US Armed Forces. If you could live anywhere, where would it be? Vail, Colorado…without question.  It is my safe haven, my happy place, ...

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