How To Ask Me About My Unique Appearance

There are many reasons why I write: to tell my unfiltered story, to bond with others dealing with craniofacial differences, and to educate those who are not. I have always wished that strangers knew more about Treacher Collins syndrome so they could see me the way I see myself. I think people forget that I don’t stare at my uniqueness all day long. The only time I see what I look like is in a mirror or photos. The rest of the time I just witness life around me through my own eyes, the way everyone else does. I see the bridge of my nose, the tips of my bangs, and on occasion, the rim of my glasses. I truly forget that I am even ...

What Happened When I Took Pride in My Appearance

Ok, I’ll admit it.  When it comes to my appearance, I’m pretty lazy.  Most weekdays I toss my sopping wet hair up into a bun and head out the door to my job.  In my defense, the alarm on my phone usually starts its obnoxious blaring at 4:30 in the morning so I can go for a run.  My gym opens at five and I’m there when the doors unlock.  I’m home and in the shower by 6:45 and I leave for work at 7:45.  You may think that seems like enough time to blow-dry and straighten my hair, but ask my stylist and she’ll confirm I have about three heads worth of it.  An hour really isn’t enough time to do everything I would ...

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