Message For Monday: Believe

I'm changing up the format for this week's message.  Here's my interpretation of the quote: Dreams don't always come to fruition but the ones that do happen because the dreamer never quit. They believed in their dream so strongly, and that belief led them to work hard to make it a reality.  Walt Disney could have quit numerous times. In fact, he was probably encouraged to stop believing in the fantasy of his studio and then again of his theme park. But he didn't. He built one of the most successful, admirable empires to date. This never would have happened had the belief in his dream waivered.  I believe in my story and my brand. I can never stop believing in either if I want to be successful. 

Finding My Craniofacial Tribe

I was born different. There’s no denying that. Maybe it’s not as noticeable now, but the truth is I wasn’t like all of my peers. Not completely anyways. I had appointments with reconstructive surgeons. I received copious amounts of stares out in public. And I knew the ins and outs of my local children’s hospital. It was all thanks to my craniofacial abnormality.  But I didn’t mind being different then and I certainly don’t mind it now either. It’s who I am and I’ve learned to embrace it. In high school, a teacher posed a question to my class of predominantly Caucasian students. How many of us had ever been the minority? No one raised a hand. It wasn’t until a while later that I realized I ...

The House That Built Me

Today I said goodbye to the only Home I have ever known. About a year ago, my parents made the decision to build a house closer to where I live. I seemed to have been denial about this even though we consistently went to check on the progress when they visited. My parents would certainly back out, right? As that expiration date drew nearer, I realized my time with my childhood Home was limited. One thing I try to hide from the world is that I am a very sensitive person, at least for things that matter most to me. Over the last few months I have cried more than I ever have in my lifetime. I lay in bed and the sobs would unexpectedly rise ...

How To Ask Me About My Unique Appearance

There are many reasons why I write: to tell my unfiltered story, to bond with others dealing with craniofacial differences, and to educate those who are not. I have always wished that strangers knew more about Treacher Collins syndrome so they could see me the way I see myself. I think people forget that I don’t stare at my uniqueness all day long. The only time I see what I look like is in a mirror or photos. The rest of the time I just witness life around me through my own eyes, the way everyone else does. I see the bridge of my nose, the tips of my bangs, and on occasion, the rim of my glasses. I truly forget that I am even ...

Diary of a Beautiful Disaster Book Launch Recap

Monday, March 27th was a dream come true. It’s when I officially celebrated the launch of Diary of a Beautiful Disaster with the world. (OK, maybe the world is a bit exaggerated, but at least with my friends and family.) I’ve never been a huge enthusiast of public speaking. I don’t mind it. I don’t hate it either. I just don’t love it. Then again, I’m not much of a talker in general, am I? I’m also a little self-conscious of the sound of my voice. It’s very common for people with craniofacial anomalies to have speech impediments. While I did work extraordinarily hard as a child to learn to speak clearly and properly, there’s no denying that my narrow nasal passage complicates things. I definitely sound ...

I am in Control

I often wish I were quick-witted. I wish I knew what to say the very moment it needed to be said. For instance, the other night in an elevator a preteen was standing across from me, noticed something weird about my face, and ran over to her friend to whisper in her ear. Her friend then ran over to stand across from me to stare. I thought to myself: are you serious right now? I need to say something. But all I could blurt out was a very quick "I know you're looking at me!" I wish I had said something stronger. Not spiteful nor malicious, just more impactful. Why say anything you ask? Because if someone is going to be that obvious about my face, I'm going ...

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